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Table 2 Burdens for informal caregivers during the first wave of the COVID-19 pandemic (N = 1000)

From: Informal caregivers during the COVID-19 pandemic perceive additional burden: findings from an ad-hoc survey in Germany

 

Main Caregiver

Time required

Level of care

Dementia

Professional help

Number of Involvement indicators met

Yes

63.2%

(n = 632)

No

35.8%

(n = 358)

Short expenditure of time

84.0%

(n = 840)

High expenditure of time

16.0%

(n = 160)

Minor Level

47.7%

(n = 477)

Serious Level

50.8%

(n = 508)

Yes

31.5%

(n = 315)

No

67.3%

(n = 673)

Yes

52.6%

(n = 526)

No

47.4%

(n = 474)

Mean (SD)

Secondary Stressors

 Change in care situation (%, n)

  much/somewhat better

3.3 (21)

3.1 (11)

3.1 (26)

3.8 (6)

3.1 (15)

3.1 (16)

2.2 (7)

3.7 (25)***

3.6 (19)**

1.5 (7)

2.0 (1.1)

  no change

63.9 (404)

65.4 (234)

64.8 (544)

63.1 (101)

68.3 (326)

61.2 (311)

56.2 (177)

69.4 (460)***

59.3 (312)

70.3 (333)**

2.1 (1.1)

  somewhat/much worse

31.3 (198)

29.1 (104)

30.4 (255)

30.6 (49)

27.3 (130)

33.5 (170)

39.7 (125)***

26.2 (176)

34.8 (183)**

25.5 (121)

2.2 (1.1)

  n.s.

1.4 (9)

2.6 (9)

1.8 (15)

2.5 (4)

1.3 (6)

2.2 (11)

1.9 (6)***

1.8 (12)

2.3 (12)**

1.5 (7)

2.0 (1.1)

 Concerns/excessive demands (M, SD)

9.9 (3.4)

9.7 (3.3)

9.8 (3.3)

10.2 (3.9)

9.5 (3.4)

10.2 (3.3)**

10.7 (3.6)***

9.4 (3.2)

10.3 (3.5)***

9.3 (3.2)

2.1 (1.1)

Intermediating Factors

 Problems with implementation of COVID-19 measures (M, SD)

9.8 (1.9)

9.7 (1.8)

9.7 (1.8)

10.1 (2.3)

9.6 (1.7)

9.9 (2.0)**

10.1 (2.0)***

9.6 (1.8)

9.8 (1.9)

9.7 (1.8)

2.1 (1.1)

 Loss of support (M, SD)

2.2 (2.5)

2.4 (2.4)

2.2 (2.4)

2.1 (2.9)

1.9 (2.3)

2.5 (2.6)***

2.7 (2.7)***

2.0 (2.3)

2.9 (2.7)***

1.5 (2.0)

2.1 (1.1)

 Provision, comprehension & practicability of COVID-19 information5 (M, SD)

3.3 (0.7)

3.3 (0.8)

3.3 (0.8)

3.3 (0.7)

3.3 (0.7)

3.3 (0.8)

3.4 (0.8)**

3.3 (0.7)

3.4 (0.8)

3.3 (0.7)

2.1 (1.1)

Stress Outcomes

 Negative feelings M (SD)

8.7 (1.6)

8.7 (1.7)

8.7 (1.6)

8.8 (1.8)

8.7 (1.6)

8.7 (1.7)

9.0 (1.8)***

8.6 (1.5)

8.8 (1.6)**

8.6 (1.6)

2.1 (1.1)

 Caregiving by myself (%, n)

  has stopped completely

0.0 (0.0)

0.0 (0.0)

0.0 (0.0)

0.0 (0.0)

0.0 (0.0)

0.0 (0.0)

0.0 (0.0)

0.0 (0.0)

0.0 (0.0)

0.0 (0.0)

–

  decreased

9.5 (60)

18.4 (66)***

14.6 (123)***

2.5 (4)

11.5 (55)

13.8 (70)

12.4 (39)

13.1 (88)

15.2 (80)*

9.9 (47)

1.7 (0.9)

  did not change

68.8 (435)***

63.7 (228)

65.4 (549)

76.3 (122)***

66.9 (319)

67.3 (342)

64.4 (203)

68.4 (460)

63.3 (333)

71.3 (338)*

2.1 (1.2)

  increased

21.7 (137)***

17.9 (64)

20.0 (168)

21.3 (34)***

21.6 (103)

18.9 (96)

23.2 (73)

18.6 (125)

21.5 (113)*

18.8 (89)

2.1 (1.1)

  1. Note. Significant values are shown in bold type. *p < .05, ** p < .01 und *** p < .001; M = mean, SD = standard deviation, % = percent, n = number, > = greater than, < = less than