Table 4 Results of Random effects probit model for caregiver DCE
Attribute | Coefficient | 95% Confidence Interval |
|---|---|---|
Intercept | − 0.09 | −0.29, 0.10 |
Reference level | ||
 A1. I would get all the information about motor neuron disease at the time of diagnosis | ||
  A2. I would get all information about motor neuron disease when I think I will need it | 0.03 | −0.23, 0.29 |
  A3. I don’t want to know anything about motor neuron disease at any time | −0.01 | −0.27, 0.25 |
B. Price of additional services | −0.00 | −0.00, 0.00 |
Reference level | ||
 C1. My loved one would get regular visits from community multidisciplinary team (for e.g. physiotherapy, occupational therapist) and the public health nurse at home | ||
  C2. My loved one would arrange multidisciplinary team (for e.g. physiotherapy, occupational therapist) and public health nurse visits as they need at home | −0.11 | −0.29, 0.07 |
Reference level | ||
 D1. I would attend Multidisciplinary team MND specialist clinic no matter how far away | ||
  D2. I would just attend a local Neurology clinic | −0.09 | −0.33, 0.15 |
Reference level | ||
 E1. I would be prepared to go to a multidisciplinary clinic with long waiting times in the clinic to see more than one professional | ||
  E2. I would not be prepared to go to a multidisciplinary clinic with long waiting times in the clinic to see more than one professional | 0.09 | −0.12, 0.30 |
Reference level | ||
 F1. No matter what I would like my loved one to receive all care at home | ||
  F2. My loved one would receive care in a hospital or a hospice as an inpatient | −0.08 | − 0.27, 0.11 |
Reference level | ||
 H1. Personal care in the home is provided by someone who is not a relative or friend | ||
  H2. Personal care in the home is provided by a relative or friend | 0.14 | −0.09, 0.36 |
Reference level | ||
 K1. Phone advice is not available | ||
  K2. Phone advice is available 24 h a day | 0.22 | −0.01, 0.45 |
  K3. Phone advice is available during the hours of 9 am – 5 pm Monday to Friday | 0.11 | −0.06, 0.29 |
Reference level | ||
 L1. Emotional support is not provided | ||
  L2. Emotional support is provided by group meetings with other MND caregivers | −0.20 | − 0.43, 0.04 |
  L3. Emotional support is provided from a counselor | −0.02 | − 0.21, 0.16 |
Reference level | ||
 M1. I would have healthcare professionals who I can depend on | ||
  M2. I would not necessarily need healthcare professionals to depend on | −0.21 | −0.37, − 0.04 |
Reference level | ||
 N1. I would have non-related individuals in my house to provide home help for my loved one | ||
  N2. I would not have non-related individuals in my house to provide home help for my loved one | −0.06 | −0.23, 0.11 |
Sex | −0.14 | −0.38, 0.09 |
Relationship to patient | −0.02 | −0.23, 0.18 |
Rho-squared = 0.05 |  |  |