Persons with dementia | Informal caregiver | ||||
---|---|---|---|---|---|
Characteristicss | Country | Characteristics | Country | ||
Italy (n = 317) N (%) | Sweden (n = 89) N (%) | Italy (n = 317) N (%) | Sweden (n = 89) N (%) | ||
Gender | Â | Â | Gender c | Â | Â |
 Male | 96 (30.3) | 24 (27.0) | Male | 99 (31.2) | 42 (47.7) |
 Female | 221 (69.7) | 65 (73.0) | Female | 218 (68.8) | 46 (52.3) |
Age (years) | Â | Â | Age (years) c | Â | Â |
 < 69 | 11 (3.5) | 10 (11.2) | < 39 | 7 (2.2) | 5 (5.7) |
 70–79 | 103 (32.5) | 35 (39.3) | 40–54 | 117 (36.9) | 21 (23.9) |
 80–89 | 188 (59.3) | 40 (44.9) | 55–69 | 99 (31.2) | 35 (39.8) |
 > 90 | 15 (4.7) | 4 (4.5) | > 70 | 94 (29.7) | 27 (30.7) |
Living situation | Â | Â | Living with persons with dementia c | Â | Â |
 Living alone | 48 (15.1) | 42 (47.2) | No | 114 (36.0) | 48 (54.5) |
 Spouse | 159 (50.2) | 44 (49.4) | Yes | 200 (63.1) | 40 (45.5) |
 Child | 68 (21.5) | 1 (1.1) | Relationship with persons with dementia |  |  |
 Other | 42 (13.2) | 2 (2.2) | Spouse | 98 (30.9) | 38 (43.2) |
Severity of disease, MMSE a | Â | Â | Child | 173 (54.6) | 44 (50.0) |
 Normal (25–30) | 2 (0.6) | 1 (1.2) | Other | 46 (14.5) | 6 (6.8) |
 Mild (21–24) | 21 (6.6) | 30 (36.1) | Marital status c |  |  |
 Moderate (10–20) | 294 (92.7) | 52 (62.7) | Married | 253 (79.8) | 66 (75.0) |
Inappropriate behaviours b | Â | Â | Not Married | 64 (20.2) | 22 (25) |
 No | 236 (74.4) | 56 (71.8) | Education c |  |  |
 Yes | 81 (25.6) | 22 (28.2) | Elementary School | 186 (58.7) | 43 (48.9) |
ADL dependency | Â | Â | Gymnasium/ Secondary | 107 (33.8) | 32 (36.4) |
 0–2 | 258 (81.4) | 87 (97.8) | University | 24 (7.6) | 13 (14.8) |
 3–6 | 59 (18.6) | 2 (2.2) | Occupation d |  |  |
 |  |  | Not actively working | 171 (53.9) | 43 (50.0) |
 |  |  | Actively working | 146 (46.1) | 43 (50.0) |
 |  |  | Disease count c | 1.09 ± 1.31 | 0.88 ± 0.99 |
 |  |  | Additional caregiver support c |  |  |
 |  |  | No additional help | 60 (18.9) | 44 (50.0) |
 |  |  | Yes additional help | 257 (81.1) | 44 (50.0) |
 |  |  | Number of additional caregivers c | 1.15 ± 0.86 | 0.97 ± 1.23 |
 |  |  | Total hours of caregiving/ day d | 6.28 ± 6.44 | 3.67 ± 4.11 |