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Table 1 Items in the evaluation questionnaire

From: Improving quality of life in cancer patients through higher participation and health literacy: study protocol for evaluating the oncological social care project (OSCAR)

Item Description
Quality of Life of Cancer Patients (EORTC QLQ-C30) [11] The EORTC QLQ-C30 is a questionnaire for measuring health-related quality of life, and is provided by the European Organisation for Research and Treatment of Cancer. Patients are asked to answer 30 questions, which address e.g. physical, emotional, cognitive, and social issues. 28 items have four response options. Two items for the global health status and the quality of life have a seven-point scale. The EORTC QLQ-C30 consists of five functional scales and three symptom scales. In addition, a global health status (QoL) scale as well as six single items. All of the scales and the single items will use a linear transformation to standardize the raw score. The  scores range from 0 to 100.
Illness Perception Questionnaire (IPQ) [12] The IPQ consists of 64 items on 8 scales, and measures the individual’s beliefs and feeling about their illness. The illness coherence subscale consists of five items and is used for the evaluation questionnaire in this study. The scores will be summed and divided by the number of items.
Patient Reaction Assessment (PRA-D) [13] The PRA-D is a self-description instrument to record the patient-perceived quality of the relationship between patients and physicians. In this study, we adapted five communication questions to a five-point Likert scale (from 1 = “I strongly disagree” to 5 = “I strongly agree”).
German modified version of the Autonomy Preference Index (API-Dm) [14] The API-Dm measures patients’ preferences for participation and information regarding medical decisions. Patients are asked to answer eleven questions using a four-point Likert scale (from 0 = “strongly disagree” to 4 = “strongly agree”). The information preference consists of seven items, with scores ranging from 0 to 28. The participation preference consists of four items, with scores ranging from 0 to 16. The total score of each patients’ preference will be transformed into scores ranging from 0 to 100.
Decisional Conflict Scale (DCS-10) [15] The DCS-10 is a self-reported questionnaire, which allows an evaluation of decision conflicts among patients. The short version of the DSC comprises ten items grouped into four subscales: uncertainty, information, values clarity, and support decision. Each item is measured on a three-point Likert scale (0 = “yes”, 2 = “unsure”, 4 = “no”). Scores range from 0 (no decision conflict) to 100 (extremely high decision conflict).
European Health Literacy Survey (HLS-EU-Q6) [16] The HLS-EU-Q6 is the short version of the 47-question European Health Literacy Survey. It is divided into three areas: healthcare, disease prevention, and health promotion. Each of the six questions has five possible responses. A mean score is calculated and allocated to one of three categories: insufficient health literacy (range 1–2), problematic health literacy (2–3), and sufficient health literacy (3–4).
Medical Care Utilization [17] Medical care will be assessed by the frequency of utilization of different therapies and physician groups.
Oslo Social Support Scale (OSSS-3) [18] The OSSS-3 is a brief measurement of social support. It consists of three questions that address the number of close people, interest and concern from other people, and practical help from neighbors. The scores range from 3 to 14 and will be categorized into three groups: 3–8 indicates poor support, 9–11 shows moderate support, and 12–14 reflects strong support.