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Table 1 Complete overview of the questionnaires used in the PROKID project

From: Remote follow-up using patient-reported outcome measures in patients with chronic kidney disease: the PROKID study – study protocol for a non-inferiority pragmatic randomised controlled trial

Name

Introduction

Baseline

Clinical questionnaire

Research questionnaire

Purpose

Identify determinants for patients choosing PRO-based follow-up

Baseline characteristics

Using questionnaire as screenings tool and dialogue support

Repeated measures of characteristics

Respondents

ALL newly referred patients in renal outpatient clinic

ALL enrolled patients in PROKID study

Participants in PRO-based follow-up and in PRO-based telephone consultation arm

ALL patients in the three randomisation groups

Content

• Renal-specific items

• SF-GH1

• HLQa (subscale 4,6,9)

• Self-efficacyb

• PAMc(2 + 12)

• Demographic

• Consent (Yes/no)h

• Renal-specific domains

• SF-GH1d

• EQ-5De

• BIPQf

Renal-specific domains

• KDQOL-SFg

• EORTC

• SF-GH1

• Need/wish for consultation

• Free textbox

• Self-efficacy

• EQ-5D

• BIPQ

• Patient involvement

• Confidence

• Satisfaction

No items

36

37

29

27

  1. a Health Literacy Questionnaire, b General Self-efficacy Scale (GSE), c Patient Activation Measure, d Short Form 36_GH1, e Euroqol Quality of Life, f Brief Illness Perception Questionnaire, g Kidney Disease Quality of Life Short Form,h Consent to allow the researchers to obtain data on blood samples from the medical record