All patient registry participants | Participants attending an NF network clinic | Participants not attending an NF network clinic | |
---|---|---|---|
Total | 4476 | 982 | 1289 |
Age | |||
Pediatric | 1980 (44.2%) | 541 (55.1%) | 493 (38.2%) |
Adult | 2496 (55.8%) | 441 (44.9%) | 796 (61.8%) |
Disease Type | |||
NF1 | 3898 (87.1%) | 844 (86.0%) | 1093 (84.8%) |
NF2 | 496 (11.1%) | 119 (12.1%) | 162 (12.6%) |
Schwannomatosis | 82 (1.8%) | 19 (1.9%) | 34 (2.6%) |
Region | |||
New England | 245 (5.5%) | 80 (8.1%) | 54 (4.2%) |
Mid East | 720 (16.1%) | 224 (22.8%) | 165 (12.8%) |
Great Lakes | 755 (16.9%) | 185 (18.8%) | 174 (13.5%) |
Plains | 383 (8.5%) | 73 (7.4%) | 97 (7.5%) |
Southeast | 1062 (23.7%) | 241 (24.5%) | 313 (24.3%) |
Southwest | 402 (9%) | 74 (7.5%) | 174 (13.5%) |
Rocky Mountain | 268 (6%) | 46 (4.7%) | 55 (4.3%) |
Far West | 641 (14.3%) | 59 (6%) | 257 (19.9%) |