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Table 2 Sociodemographic data, health status and satisfaction with care of the study participants responding to the CSQ-4 (n = 948; %)

From: Quality of health care in adolescents and adults with disorders/differences of sex development (DSD) in six European countries (dsd-LIFE)

Variable

Categories

Turner syndrome (TS)

Klinefelter syndrome (KS)

Congenital adrenal hyperplasia (CAH)

Female XY-DSD

Male XY-DSD

Total

Age

p50 [p25; p75]

29 [21; 43]

37 [27; 51]

29 [21, 38]

26.5 [21; 36.5]

22 [18; 29]

29 [21; 41]

Education

Low

40 (15.33)

53 (30.64)

40 (21.05)

29 (16.67)

26 (31.33)

188 (21.34)

Medium

130 (49.81)

94 (54.34)

100 (52.63)

76 (43.68)

36 (43.37)

436 (49.49)

High

91 (34.87)

26 (15.03)

50 (26.32)

69 (39.66)

21 (25.30)

257 (29.17)

Feeling about household income

Finding it (very) difficult to live on present income

35 (14.29)

29 (17.26)

30 (16.22)

19 (11.11)

8 (14.04)

121 (14.65)

Coping with present income

113 (46.12)

83 (49.40)

78 (42.16)

73 (42.69)

31 (54.39)

378 (45.76)

Living comfortably on present income

97 (39.59)

56 (33.33)

77 (41.62)

79 (46.20)

18 (31.58)

327 (39.59)

Health status

Very bad

1 (0.36)

4 (1.9)

4 (1.9)

3 (1.63)

0 (0)

12 (1.27)

Bad

8 (2.87)

22 (11.64)

11 (5.21)

11 (5.98)

13 (15.29)

65 (6.86)

Fair

80 (28.67)

61 (32.28)

62 (29.38)

45 (24.46)

23 (27.06)

271 (28.59)

Good

167 (59.86)

85 (44.97)

102 (48.34)

90 (48.91)

36 (42.35)

480 (50.63)

Very good

23 (8.24)

17 (8.99)

32 (15.17)

35 (19.02)

13 (15.29)

120 (12.66)

Satisfaction with care

CSQ4 p50 [p25; p75]

14 (12; 15)

13 (11; 15)

14 (12; 15)

13 (11; 15)

13 (11; 15)

13 (12; 15)

YHC-SF total satisfaction

56 (47; 75)

53 (42; 75)

61 (50; 83)

58 (42; 81)

53 (47; 75)

56 (47; 75)

YHC-SF info satisfaction

50 (50; 75)

50 (33; 75)

58 (50; 75)

50 (38; 75)

50 (33; 75)

50 (42; 75)

YHC-SF care satisfaction

50 (50; 75)

50 (42; 75)

58 (50; 83)

58 (42; 83)

50 (50; 75)

50 (50; 75)

YHC-SF doctor satisfaction

58 (50; 75)

58 (50; 75)

75 (50; 92)

67 (50; 83)

67 (50; 83)

67 (50; 83)

  1. Differences between diagnostic groups: age (Test for difference in median) p = 0.000; education (Pearson chi2 (8) = 42.3919), Pr = 0.000; income (Pearson chi2(8) = 9.5527), Pr = 0.298; general health (Pearson chi2(16) = 50.6480) Pr = 0.000; global satisfaction with care CSQ4 (Test for difference in median) p = 0.022; YHC-SF total satisfaction p = 0.209; YHC-SF info satisfaction p = 0.189; YHC-SF care satisfaction p = 0.049; YHC-SF doctor satisfaction p = 0.265