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Table 2 Final and Intermediate outcome measures: transplant center-reported

From: A complex culturally targeted intervention to reduce Hispanic disparities in living kidney donor transplantation: an effectiveness-implementation hybrid study protocol

Construct

Measure description

Final outcomes

 Ratio of Hispanics to Non-Hispanic Whites Receiving LDKTs

This ratio takes into account growth in transplant center volume while also providing a comparison to non-Hispanic whites, necessary for assessing disparities in LDKT [102]. The ratio provides an index of whether the Hispanic LDKT increase has grown over and above the increase observed at a center overall. By using this ratio, factors related to the center’s infrastructure and capacity to perform additional LDKTs that affect both Hispanics and non-Hispanic whites equally are accounted for. Institutional commitments to LDKT that are associated with higher rates of LDKT, can influence willingness to donate or preferences for LDKT, and affect both populations equally (e.g., paired donation, and desensitization efforts), are accounted for.

 Number of Hispanic LDKTs

Change in number of Hispanic LDKTs compared to change in number of non-Hispanic white LDKTs will provide evidence that the increase is not at the expense of white patients.

 Number of Hispanic Patients Added to the Waiting list:

An increase in this number indicates success in overcoming barriers in gaining access (referral) to transplantation and completing the evaluation [103].

 Number of Hispanic Potential Donors per Potential Recipient

An increase in this proportion reflects success in encouraging more potential living donors to undergo donor evaluation.

Intermediate Outcomes

 # Patients referred by outreach

The aggregate number of patients who were referred by outreach staff. Referral can be made by self, staff at dialysis centers, nephrologists, primary physicians, or transplant outreach staff.

 # Patients scheduled/attending the education session

The aggregate number of patients who were scheduled and attended the HKTP education sessions.

 # Patients who completed evaluation

The aggregate number of patients who completed the transplant evaluation process.

 # Patients waitlisted

The number of additions to the transplant center’s own waiting list will serve as a proxy for access to the waiting list.

 # Days on waiting list, dialysis time

The number of days patients have waited on the waiting list to date.

 # Pre-emptive transplants

The number of patients who received a living donor transplant prior to going on dialysis.

 # Potential donors at each phase of evaluation

The aggregate number of potential living donors who have completed each phase of the donor evaluation process.

 # Days for donor to complete each phase of evaluation

The number of days from start to finish of each phase of living donor evaluation from initiation to clearance for donation to donation.

 Potential donor disposition

The donor’s evaluation status as: initiated, completed, ruled out, withdrew, alternate donor found.

Contextual Outcomes

 Patient and potential donor socioeconomic status

Age, gender, race/ethnicity, insurance.

 Organ Procurement Organization and transplant center factors

ESRD incidence, and transplant center volume.