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Table 2 Socio-demographic variables, patients, and relatives

From: Telephone health services in the field of rare diseases: a qualitative interview study examining the needs of patients, relatives, and health care professionals in Germany

Sample characteristics

  

Parameters

Patients and relatives (n = 68)

Physicians (n = 39)

Sex

 Male

23

23

 Female

45

16

Age

 Average

51

46

 Maximum/Minimum

85/18

 

Educational qualification

 Abitur/A-levels

13

 

 Secondary education

19

 

 Technical collage/University

19

39

 Advanced technical college degree

12

 

 Secondary modern school qualification

5

 

Age at diagnosis

 Average

34

 

 Maximum/Minimum

74/0

 

Disease severity

 No specification

4

 

 Low

8

 

 Medium

28

 

 Severe

28

 

Profession

 Employed

31

39

 Housewife/Houseman

2

 

 Unemployable/Special circumstance

15

 

 Student/Scholar

2

 

 Pensioner

18

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