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Table 2 Summary of barriers to accessing hospital services in Timor-Leste

From: “I go I die, I stay I die, better to stay and die in my house”: understanding the barriers to accessing health care in Timor-Leste

Geographic accessibility

Availability

Financial Affordability

Acceptability

Supply-side factors

Service location

Hospital coverage

 - long distances to hospital

 - 13 districts, only 6 hospitals

 - 25 % patients >2 h to primary facility

Patient transport provided by health service

 - cannot access all areas

 - limited availability during wet season

 - no service to transfer patient home

 - recovering patients stranded

Demand-side factors

User’s location

Isolated communities

 - Infrastructure poor

 - rugged terrain, poor roads + bridges

 - ambulance cannot reach patient

 - patient journey to services difficult

Public transport

 - no connections to distant villages

 - infrequent services

Private/community transport

 - uncomfortable, difficult journey being carried the ‘traditional way’

 - walk, use porters, horse

 - unreliable, ad hoc arrangements

 - family/community vehicle, police

 - need to hire private car, truck, motorbike

Supply-side factors

Health workers, drugs, equipment

Patient transport

 - too few ambulances

 - lack of coverage

 - poorly maintained

 - out of service, no fuel, no driver

Service delivery

Short opening hours

 - unable to access services after 3 pm

 - facility phone not answered 24 h Ambulance not available 24 h

 - no emergency service outside hours

 - no referral to hospital outside hours

Long waiting times at hospital

 - staff not assisting lost patients

 - randomly rescheduling appointments

Laboratory tests, blood supplies

 - few service locations

 - service availability erratic

Medicines – regular stockouts

Human resources

Staff often not available to accompany patient in ambulance

 - rely on companion for clinical support

Demand-side factors

Patient transport

Fear of being stranded after hospital visit

 - no fee support for transport home

 - patients stranded while still in recovery

Repatriating deceased relatives

 - limited provision through health services

 - no established private providers

Supply-side factors

Medicine stockouts in public sector

 - purchase medicines from private sector

Blood supplies limited

 - high cost of blood from private donor

 - no standard charge

Demand-side factors

Costs and prices of accessing services

Out-of-pocket expenses

 - Ambulance

 - patients/family pay for fuel

 - patients/family pay driver

 - costs to return home after transfer

Transport charges

 - private car, truck, motorbike

 - public transport fares

 - repeat visits extra burden

Indirect costs

 - food, accommodation, transport

 - recuperation period

 - companion/s costs

 - gifts, contribution to host family

 - opportunity costs

 - lost income

 - divert money needed for essentials

Repatriation of the deceased

 - provider surcharge to carry deceased

 - large families, costs multipled

 - previously experienced prohibitive costs

 - families choose to not seek care

 - reserve money for funeral costs

User’s resources and willingness to pay

Ability to pay limited, poverty rate high

 - 44.3 % population below US$1.25 per day

 - direct + indirect costs barrier to access

Supply-side factors

Characteristics of health services

Staff conduct

 - blame and shame attitude to vulnerable

 - shouting at patients

 - delaying care, prolonging labour

Nepotism

 - ignoring patient requests for assistance

 - fast track wealthier patients, family

Provision

 - service coverage poor

 - six hospitals to cover 13 districts

 -laboratory tests

 - irregular availability

 - patient transport poor quality

Demand-side factors

User’s attitudes and expectations

Dissatisfaction with quality of services

 - fear journey/transfer to hospital without medical supervision

 - disrespectful staff attitudes, nepotism

Social isolation visiting hospital

 - hospital far from home, unfamiliar area

 - overwhelmed by hospital systems

 - depend on family support near hospital

 - resignation/preference to ‘die at home’

Medicines

 - unconvinced medicines effective

 - given same medicine, different illnesses

Traditional medicines

 - strong cultural belief supports efficacy

 - acceptable substitute/preferred option

 - used to complement medicines

  1. Adapted from Peters et al. [29]