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Table 2 Integrated Care Items Included in VARCLUS Analysis

From: Development of a survey instrument to measure patient experience of integrated care

Hypothesized scale domain

Item number and content

Final scale disposition

General Coordination

  
 

6. In the last 12 months, when receiving care for a medical problem, how often did you receive conflicting or disagreeing information from different doctors?

Coordination within and between care teams

 

7. In the last 12 months, how often did you have to repeat yourself, or explain your problem again, to different doctors?

Coordination within and between care teams

 

8. In the last 12 months, how often were you confused because different doctors told you different things?

Coordination within and between care teams

 

73. In the last 12 months, how often have you felt your time was wasted because your care was poorly organized or poorly coordinated?

Coordination within and between care teams

 

74. In the last 12 months, how often have you had trouble getting your doctors coordinated?

Coordination within and between care teams

 

78. In the last 12 months, how often did you know what the next step for your treatment would be?

Did not scale

Coordination within care team

  
 

29. In the last 12 months, how often did [your regular doctor/doctors] seem to know the important information about your medical history?

Coordination within and between care teams

 

30. When you need care or treatment, how often [does your regular doctor or medical staff/do doctors or their medical staff] you see know important information about your medical history?

Coordination within and between care teams

Continuous and proactive and responsive action between visits

  
 

24. When you had blood tests, x-rays or other tests, how often did someone call or send you the results of your tests?

Did not scale

 

26. In the last 12 months, how often were results from your recent tests available at your doctor’s office at the time of your appointment?

Did not scale

 

16. In the last 12 months, when you phoned your regular doctor’s office during regular office hours, how often did you get an answer to your medical question that same day?

Did not scale

 

18. In the last 12 months, when you phoned your regular doctor’s office, how often did you get an answer to your medical question as soon as you needed?

Did not scale

Coordination between care teams

  
 

42. In the last 12 months, how often did you feel the specialists you saw had all the information they needed from your medical history?

Communication between primary care doctor and specialist

 

43. In the last 12 months, when you saw a specialist, how often were you given enough information about why you were there by your [regular doctor/doctors]?

Communication between primary care doctor and specialist

 

44. In the last 12 months, when seeing the specialists how often did he or she have enough information from your [regular doctor/doctors]?

Communication between primary care doctor and specialist

 

5. In the last 12 months, after you saw the specialists how often did your [regular doctor/doctors] know what happened at your visit with the specialist?

Communication between specialist and primary care doctor

 

46. In the last 12 months, after you saw the specialists how often did your [regular doctor/doctors] seem informed and up-to-date about the care you got from the specialists?

Communication between specialist and primary care doctor

 

48. In the last 12 months, after you saw a specialist, how often did your [regular doctor/doctors] talk with you about what happened at the visit?

Communication between specialist and primary care doctor

Coordination with Community Resources

  
 

73. When you need care or treatment, how often [does your regular doctor or medical staff/do doctors or their medical staff] discuss with you different places you could go to get help with that problem or concern?

Coordination with community resources

 

67. How often [does your regular doctor/do your doctors] help you find additional health related services, if you so choose?

Coordination with community resources

Navigation

  
 

34. In the past 12 months, how often [does your regular doctor or staff/do doctors or their staff] help schedule your appointments, referrals or tests?

Navigation-Care team arranged appointments and visits

 

68. If you needed another visit with your regular doctor, how often did the staff do everything they could to make necessary arrangements or appointments?

Navigation-Care team arranged appointments and visits

 

69. If you needed another visit with another doctor, how often did the staff do everything they could to make necessary arrangements or appointments?

Navigation-Care team arranged appointments and visits

 

70. If you needed lab or radiology tests scheduled, how often did the staff do everything they could to make necessary arrangements or appointments?

Navigation-Care team arranged appointments and visits

 

71. If you needed another visit with your regular or another doctor, how often did the staff do everything they could to make necessary arrangements when you thought you needed it?

Navigation-Care team arranged appointments and visits

 

72. If you needed another visit with your regular or another doctor, how often did the staff do everything they could to make necessary arrangements at your preferred location?

Navigation-Care team arranged appointments and visits

  1. Response categories for each item: 1 = never, 2 = almost never, 3 = sometimes, 4 = usually, 5 = almost always, 6 = always