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Table 6 Composition of questionnaires for quantitative data collection

From: Assessing cancer patients’ quality of life and supportive care needs: Translation-revalidation of the CARES in Flemish and exhaustive evaluation of concurrent validity

Questionnaires

Instrument

Data collected

Questionnaire 1

  

T 0 Baseline

Self-administered questions on socio-demographic and medical aspects

Age, sex, marital status, children, education, employment status, household income, social surrounding, involved care providers, diagnosis, date of diagnosis, treatment(s), start and end dates of treatments.

 

CARES

Quality of life and rehabilitation needs

 

KPS

Physical and daily functioning

 

HADS

Symptoms of anxiety and depression

 

SSL

Social support

 

MMQ

Marital and sexual life adjustment

 

EORTC-QOL-C30

Quality of life

 

DT + PL

Distress and problems

 

Care needs questionnaire administered by E. Pauwels

Care needs

Questionnaire 2

  

T 1 After 1 week

CARES

Quality of life and rehabilitation needs

 

Self-administered questions

Relevance of CARES-topics, timespan filling in, mode preference,…

  1. Abbreviations CARES Cancer Rehabilitation Evaluation System, KPS Karnofsky Performance status Scale, HADS Hospital Anxiety and Depression Scale, SSL Social Support List, MMQ Maudsley Marital Questionnaire, EORTC-QLQ -C30 European Organisation of Research and Treatment for Cancer Quality of Life Questionnaire Core 30, DT Distress Thermometer, PL Problem List