Average age (years) | |
All patients | 18.3 (15.1) |
Adult patients | 31.1 (10.1) |
Sex | |
Male | 52.7 % |
Female | 47.3 % |
Is there a caregiver? | |
Yes | 44.6 % |
No | 57.4 % |
Average age of (principal) caregiver (years) | 37.3 (11.6) |
Average informal care hours per week (whole sample) | 33.4 (52.9) |
Average informal care hours per week (if there is a caregiver) | 74.8 (56.5) |
Health Related Quality of Life (Visual Analog Scale) | 62.23 (20.09) |
Adult CF patients (n = 37)a | |
Visual Analog Scale score for general populationb | 86.84 (14.41) |
Main Caregivers for CF patients (n = 33)c | 80.85 (14.68) |
Visual Analog Scale score for general populationd | 86.56 (13.79) |
Health Related Quality of Life (EQ-5D index score) | |
Adult CF patients (n = 37)a | 0.640 (0.264) |
EQ-5D index score for general populationb | 0.93 (0.15) |
Main Caregivers for CF patients (n = 33)c | 0.836 (0.155) |
EQ-5D index score for general populationd | 0.91 (0.16) |