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Table 2 Items required for explaining an EHR-linked research register, and how often they occur

From: Consenting for contact? Linking electronic health records to a research register within psychosis services, a mixed method study

Item # Item Clinician mentioned (Total potential n 100) SU mentioned in consultation or summary to researcher (Total potential n 100)
1 Having a health record 77 0
2 Having an EHR 66 0
3 Confidentiality of EHR 28 0
4 Benefits of research 80 15
5 Types of research 54 12
6 Personalised example of research 48 4
7 Researchers have been ‘approved’ 52 6
8 Researchers’ confidentiality 37 12
9 Researchers will identify you from EHR 62 12
10 Researchers may contact you in future 94 44
11 The register is voluntary 77 23
12* Future studies are voluntary 62 17
13* Service user can change their mind 69 23
14 Decision won’t affect care 32 2
15* Can stipulate, i.e., what/when/how contacted 77 18
16 Ask whether they wish to join the register 84 0
17 Questions and concerns 67 0
18 Who to contact for further information 58 0
  1. *significant differences between ‘yes’ and ‘no/undecided’ samples
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