From: Health state descriptions to elicit stroke values: do they reflect patient experience of stroke?
Preference elicitation studies (n = 7) | Counts, (%) | Qualitative literature (n = 28) | Counts, (%) |
---|---|---|---|
Paralysis | 7 (100) | Change in self-identity, social role | 26 (93) |
Dependence i.e. feeding, dressing, washing | 7 (100) | Emotional difficulties | 25 (89) |
Feeling weakness. numbness, tingling | 6 (86) | Mobility and ambulation | 24 (86) |
Expressive problems | 6 (86) | Returning to normal regular activities | 24 (86) |
Mobility and ambulation | 5 (71) | Support and networks | 23(82) |
Coordination and dexterity | 4 (57) | Coordination and dexterity | 23 (82) |
Memory and thinking | 4 (57) | Recovery, getting better | 22 (79) |
Returning to normal regular activities | 4 (57) | Dependence i.e. feeding, dressing, washing | 20 (71) |
Facial droop | 3 (43) | Expressive problems | 17 (61) |
Toileting | 2 (29) | Fatigue | 16 (57) |
Discharge from care and care arrangements | 2 (29) | Perception by others | 15 (54) |
Mortality | 2 (29) | Unpredictability, unreliability | 14 (50) |
Pain | 1 (14) | Paralysis | 14 (50) |
Receptive problems | 1 (14) | Concern for NOK | 14 (50) |
Continuing or worsening disability | 1 (14) | Memory and thinking | 13 (46) |
Dizzy and faint | 0 (0) | Discharge from care and care arrangements | 13 (46) |
Sight | 0 (0) | Continuing or worsening disability | 12 (43) |
Fatigue | 0 (0) | Perplexity | 11 (39) |
Mind-body split | 0 (0) | Further risk | 11 (39) |
Loss of swallow | 0 (0) | Feeling weakness. numbness, tingling | 11 (39) |
Concern for NOK | 0 (0) | Mortality | 11 (39) |
Change in self-identity, social role | 0 (0) | Dissociation of self and body | 9 (32) |
Unpredictability, unreliability | 0 (0) | Dizzy and faint | 6 (21) |
Perplexity | 0 (0) | Pain | 6 (21) |
Perception by others | 0 (0) | Sight | 6 (21) |
Support and networks | 0 (0) | Toileting | 4 (14) |
Emotional difficulties | 0 (0) | Facial droop | 3 (11) |
Further risk | 0 (0) | Loss of swallow | 3 (11) |
Recovery, getting better | 0 (0) | Receptive problems | 2 (7) |