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Table 5 Rank ordering of categories by counts of study and study type

From: Health state descriptions to elicit stroke values: do they reflect patient experience of stroke?

Preference elicitation studies (n = 7)

Counts, (%)

Qualitative literature (n = 28)

Counts, (%)

Paralysis

7 (100)

Change in self-identity, social role

26 (93)

Dependence i.e. feeding, dressing, washing

7 (100)

Emotional difficulties

25 (89)

Feeling weakness. numbness, tingling

6 (86)

Mobility and ambulation

24 (86)

Expressive problems

6 (86)

Returning to normal regular activities

24 (86)

Mobility and ambulation

5 (71)

Support and networks

23(82)

Coordination and dexterity

4 (57)

Coordination and dexterity

23 (82)

Memory and thinking

4 (57)

Recovery, getting better

22 (79)

Returning to normal regular activities

4 (57)

Dependence i.e. feeding, dressing, washing

20 (71)

Facial droop

3 (43)

Expressive problems

17 (61)

Toileting

2 (29)

Fatigue

16 (57)

Discharge from care and care arrangements

2 (29)

Perception by others

15 (54)

Mortality

2 (29)

Unpredictability, unreliability

14 (50)

Pain

1 (14)

Paralysis

14 (50)

Receptive problems

1 (14)

Concern for NOK

14 (50)

Continuing or worsening disability

1 (14)

Memory and thinking

13 (46)

Dizzy and faint

0 (0)

Discharge from care and care arrangements

13 (46)

Sight

0 (0)

Continuing or worsening disability

12 (43)

Fatigue

0 (0)

Perplexity

11 (39)

Mind-body split

0 (0)

Further risk

11 (39)

Loss of swallow

0 (0)

Feeling weakness. numbness, tingling

11 (39)

Concern for NOK

0 (0)

Mortality

11 (39)

Change in self-identity, social role

0 (0)

Dissociation of self and body

9 (32)

Unpredictability, unreliability

0 (0)

Dizzy and faint

6 (21)

Perplexity

0 (0)

Pain

6 (21)

Perception by others

0 (0)

Sight

6 (21)

Support and networks

0 (0)

Toileting

4 (14)

Emotional difficulties

0 (0)

Facial droop

3 (11)

Further risk

0 (0)

Loss of swallow

3 (11)

Recovery, getting better

0 (0)

Receptive problems

2 (7)