Table 4 Problems with staff-patient interactions, information provision, involvement in decisions and self-care support by age and condition for items included in OxPIE
Questionnaire items | Age group | No-LLTC % | 95% CI | S-LLTC % | 95% CI | M-LLTC % | 95% CI |
|---|---|---|---|---|---|---|---|
Doctors’ answers to important | 16-29 | 41.0 | 39.0-43.0 | 46.1 | 42.6-49.7 | 50.4 | 44.0-56.9 |
questions not always clear | 30-44 | 34.9 | 33.4-36.4 | 39.7 | 37.3-42.1 | 50.5 | 46.2-54.7 |
45-59 | 25.4 | 24.4-26.4 | 33.7 | 32.2-35.2 | 39.8 | 37.4-42.2 | |
60-74 | 18.3 | 17.6-18.9 | 29.0 | 27.9-30.1 | 35.9 | 34.2-37.6 | |
75-89 | 20.1 | 19.2-20.9 | 34.2 | 32.9-35.4 | 42.1 | 40.5-43.7 | |
≥ 90 | 30.4 | 26.3-34.4 | 34.9 | 30.1-39.6 | 51.4 | 47.3-55.6 | |
Total | 23.8 | 23.3-24.2 | 33.3 | 32.6-33.9 | 41.2 | 40.2-42.2 | |
Nurses’ answers to important | 16-29 | 40.1 | 38.1-42.0 | 48.6 | 45.0-52.2 | 49.1 | 42.7-55.6 |
questions not always clear | 30-44 | 35.1 | 33.6-36.5 | 39.9 | 37.5-42.3 | 45.7 | 41.5-49.9 |
45-59 | 26.7 | 25.6-27.7 | 35.1 | 33.6-36.6 | 38.3 | 35.9-40.7 | |
60-74 | 20.7 | 20.0-21.4 | 31.2 | 30.1-32.4 | 37.2 | 35.5-40.7 | |
75-89 | 20.9 | 20.1-21.7 | 35.7 | 34.4-37.0 | 41.7 | 40.1-43.2 | |
≥ 90 | 28.7 | 24.8-32.7 | 42.7 | 37.8-47.6 | 48.3 | 44.2-52.4 | |
Total | 25.0 | 24.5-25.4 | 35.0 | 34.4-35.7 | 40.8 | 39.8-41.7 | |
Not easy to find someone to | 16-29 | 45.4 | 43.3-47.4 | 48.3 | 44.8-51.9 | 59.4 | 53.0-65.8 |
talk about worries and fears | 30-44 | 39.9 | 38.4-41.4 | 49.0 | 46.6-51.5 | 57.5 | 53.4-61.7 |
45-59 | 32.7 | 31.6-33.8 | 41.9 | 40.4-43.5 | 47.9 | 45.4-50.4 | |
60-74 | 25.6 | 24.8-26.4 | 38.0 | 36.8-39.2 | 43.3 | 41.5-45.1 | |
75-89 | 26.8 | 25.9-27.7 | 42.1 | 40.8-43.5 | 48.0 | 46.4-49.6 | |
≥ 90 | 35.2 | 31.0-39.3 | 47.8 | 42.8-52.8 | 57.4 | 53.3-61.5 | |
Total | 30.4 | 30.0-30.9 | 41.6 | 40.9-42.3 | 48.1 | 47.1-49.1 | |
Hospital staff sometimes gave | 16-29 | 48.0 | 46.0-50.1 | 60.3 | 56.8-63.8 | 69.7 | 63.8-75.7 |
conflicting information | 30-44 | 40.3 | 38.8-41.8 | 50.4 | 48.0-52.9 | 59.2 | 55.1-63.3 |
45-59 | 32.6 | 31.5-33.6 | 43.0 | 41.4-44.5 | 49.9 | 47.5-52.4 | |
60-74 | 24.5 | 23.7-25.2 | 36.4 | 35.2-37.5 | 43.1 | 41.3-44.9 | |
75-89 | 20.5 | 19.6-21.3 | 34.8 | 33.5-36.1 | 40.1 | 38.5-41.7 | |
≥ 90 | 26.1 | 22.2-30.0 | 36.2 | 31.4-41.0 | 44.0 | 39.9-48.2 | |
Total | 28.5 | 28.0-28.9 | 39.5 | 38.8-40.2 | 44.7 | 43.7-45.7 | |
Did not feel got enough | 16-29 | 39.8 | 37.8-41.7 | 49.0 | 45.4-52.6 | 61.1 | 54.8-67.5 |
emotional support from staff | 30-44 | 36.3 | 34.8-37.8 | 46.3 | 43.8-48.7 | 58.1 | 53.9-62.2 |
45-59 | 26.7 | 25.7-27.8 | 38.5 | 37.0-40.0 | 44.8 | 42.4-47.3 | |
60-74 | 17.8 | 17.2-18.5 | 30.8 | 29.6-31.9 | 36.3 | 34.6-38.1 | |
75-89 | 17.0 | 16.2-17.8 | 31.9 | 30.6-33.2 | 37.5 | 35.9-39.1 | |
≥ 90 | 25.4 | 21.6-29.2 | 39.1 | 34.2-44.0 | 50.1 | 45.9-54.2 | |
Total | 23.1 | 22.7-23.5 | 35.1 | 34.4-35.7 | 41.0 | 40.0-42.0 | |
Not always treated with respect | 16-29 | 34.1 | 29.5-33.3 | 39.7 | 26.2-43.2 | 47.4 | 40.9-53.9 |
and dignity | 30-44 | 26.7 | 25.3-28.1 | 31.4 | 29.2-33.7 | 42.8 | 38.6-46.9 |
45-59 | 19.0 | 18.1-19.9 | 25.5 | 24.2-26.9 | 32.6 | 30.3-34.9 | |
60-74 | 12.4 | 11.8-12.9 | 20.5 | 19.5-21.5 | 25.8 | 24.3-27.4 | |
75-89 | 10.9 | 10.3-11.6 | 21.2 | 20.1-22.3 | 26.9 | 25.4-28.3 | |
≥ 90 | 18.4 | 15.0-21.7 | 27.8 | 23.4-32.3 | 35.2 | 31.3-39.1 | |
Total | 16.3 | 15.9-16.7 | 23.7 | 23.1-24.3 | 29.5 | 28.6-30.4 | |
Not fully involved in decisions | 16-29 | 51.1 | 49.1-53.2 | 57.6 | 54.1-61.2 | 66.7 | 60.5-72.8 |
About care and treatment | 30-44 | 48.7 | 47.1-50.2 | 54.9 | 52.5-57.4 | 62.8 | 58.8-66.9 |
45-59 | 43.3 | 42.1-44.4 | 49.2 | 47.6-50.7 | 54.3 | 51.9-56.8 | |
60-74 | 36.9 | 36.1-37.8 | 46.9 | 45.7-48.1 | 52.4 | 50.6-54.2 | |
75-89 | 43.4 | 42.4-44.5 | 55.1 | 53.7-56.4 | 61.3 | 59.8-62.9 | |
≥ 90 | 55.2 | 50.9-59.6 | 63.3 | 58.5-68.1 | 70.3 | 66.5-74.1 | |
Total | 42.4 | 41.9-42.9 | 51.3 | 50.6-52.0 | 58.4 | 57.4-59.3 | |
Not fully involved in decisions | 16-29 | 48.0 | 45.9-50.0 | 49.6 | 46.0-53.2 | 52.4 | 45.9-58.8 |
about discharge | 30-44 | 43.6 | 42.0-45.1 | 47.8 | 45.3-50.2 | 52.9 | 48.7-57.1 |
45-59 | 38.6 | 37.5-39.7 | 43.1 | 41.6-44.6 | 46.7 | 44.3-49.2 | |
60-74 | 35.2 | 32.5-34.1 | 46.2 | 39.4-41.8 | 50.9 | 43.3-46.9 | |
75-89 | 41.4 | 34.2-36.2 | 47.1 | 44.8-47.5 | 55.7 | 49.2-52.5 | |
≥ 90 | 38.4 | 37.0-45.7 | 52.4 | 42.1-52.1 | 55.4 | 51.6-59.8 | |
Total | 37.1 | 36.6-37.6 | 43.9 | 43.2-44.6 | 49.0 | 48.0-50.0 | |
Not told who to contact if | 16-29 | 33.1 | 31.2-35.0 | 32.5 | 29.2-35.9 | 40.6 | 34.2-47.0 |
Worried about condition or | 30-44 | 28.1 | 26.7-29.5 | 31.4 | 29.1-33.7 | 36.8 | 32.7-40.9 |
treatment after discharge | 45-59 | 23.5 | 22.5-24.5 | 25.7 | 24.3-27.0 | 30.6 | 28.3-32.8 |
60-74 | 21.4 | 20.7-22.1 | 26.4 | 25.3-27.4 | 29.2 | 27.6-30.9 | |
75-89 | 31.8 | 30.8-32.8 | 36.8 | 35.5-38.1 | 41.6 | 40.0-43.2 | |
≥ 90 | 55.1 | 50.6-59.5 | 55.9 | 51.0-61.0 | 58.8 | 54.7-63.0 | |
Total | 26.5 | 26.1-27.0 | 30.5 | 29.9-31.2 | 37.0 | 36.0-37.9 | |
Not told about danger signals | 16-29 | 52.0 | 50.0-54.0 | 52.1 | 48.5-55.7 | 57.8 | 51.3-64.2 |
to watch out for at home | 30-44 | 47.8 | 46.2-49.3 | 49.5 | 47.0-51.9 | 58.9 | 54.7-63.0 |
45-59 | 41.2 | 40.1-42.4 | 44.2 | 42.6-45.8 | 48.3 | 45.8-50.8 | |
60-74 | 36.7 | 35.9-37.6 | 44.4 | 43.2-45.6 | 48.2 | 46.4-50.0 | |
75-89 | 39.2 | 38.2-40.2 | 50.4 | 49.0-51.8 | 53.7 | 52.0-55.3 | |
≥ 90 | 44.7 | 40.2-49.2 | 51.2 | 46.1-56.4 | 58.5 | 54.3-62.6 | |
Total | 40.7 | 40.2-41.2 | 47.0 | 46.3-47.7 | 51.8 | 50.8-52.8 | |
Family/friends not given | 16-29 | 46.7 | 44.7-48.7 | 48.1 | 44.5-51.7 | 47.8 | 41.2-54.3 |
sufficient information to help | 30-44 | 39.1 | 37.6-40.6 | 46.0 | 43.5-48.5 | 52.3 | 48.1-56.5 |
recovery | 45-59 | 34.6 | 33.5-35.7 | 40.4 | 38.8-41.9 | 42.9 | 40.1-45.4 |
60-74 | 29.7 | 28.9-30.5 | 38.4 | 37.2-39.5 | 41.2 | 39.4-43.0 | |
75-89 | 28.6 | 27.6-29.5 | 40.5 | 39.2-41.8 | 44.4 | 42.7-46.0 | |
≥ 90 | 34.0 | 29.8-38.2 | 43.0 | 38.0-48.1 | 49.2 | 45.0-53.4 | |
Total | 32.7 | 32.2-33.2 | 40.6 | 39.9-41.3 | 44.2 | 43.2-45.2 |