Table 1 Sample characteristics
Entire sample (N = 101) | Men (n = 57) | Women (n = 44) | p | ||
|---|---|---|---|---|---|
Age (yrs); mean ± SD | 48.9 ± 14.5 | 49.2 ± 14.6 | 48.6 ± 14.8 | 0.854 | |
Education level | Low | 7 (7.1%) | 3 (5.4%) | 4 (9.3%) | 0.614 |
Medium | 46 (46.5%) | 28 (50.0%) | 18 (41.9%) | ||
High | 46 (46.5%) | 25 (44.6%) | 21 (48.8%) | ||
Age group at onset | Childhood /adolescence | 36 (35.6%) | 19 (33.3%) | 17 (38.6%) | 0.581 |
Adulthood | 65 (64.4%) | 66.7 (67%) | 27 (61.4%) | ||
Diagnoses | Inherited muscle diseases* | 56 (55.4%) | 31 (54.4%) | 25 (56.8%) | 0.807 |
Acquired muscle diseases** | 22 (21.8%) | 10 (17.5%) | 12 (27.3%) | 0.240 | |
SMA III and IV*** | 14 (13.9%) | 8 (14%) | 6 (13.6%) | 0.954 | |
Time from first consultation to diagnosis (yrs); mean (median) | 4.3 (1.0) | 2.9 (1.0) | 6.1 (3.0) | 0.014 | |
First consultation | Neurologists | 15 (14.9%) | 9 (15.8%) | 6 (13.6%) | 0.763 |
General practitioners | 38 (37.6%) | 24 (42.1%) | 14 (31.8%) | 0.29 | |
Non-neurological specialists | 48 (47.5%) | 24 (42.1%) | 24 (54.5%) | 0.214 |