Outcome | Measure | Respondents |
---|---|---|
Diabetes-specific quality of life | Paediatric Quality of Life Inventory (PEDSQoL diabetes module: 11 items [40]) | Patient (11+yrs), parent proxy (patients 5-11 yrs), parent |
 | Problem Areas in Diabetes (PAID: 23 items [41]) |  |
 | 2 global items to assess change in QoL (follow-up only)* |  |
Perceptions of health care provider | Health Care Climate Questionnaire (HCC: adapted from 7 to 5-point scale [43]) | Patient, parent |
 | 3 additional items (respondents asked to circle an emotion to indicate anticipatory feelings towards going to clinic)* |  |
 | Patient Enablement Inventory (PEI: 6 items [44]) |  |
 | Continuity of Care Scale (8 items [45]) |  |
Self-efficacy | Perceived Competency Scale (4 items [43]) | Patient, parent |
Self-care | 'Mis-management' (4 items adapted from Weisberg-Benchall et al. [42]) | Patient (11+yrs), parent proxy (patients 5-11 yrs) |
 | Importance of self-care (6 items)* and confidence in ability (6 items)* | Patient, parent |